Get Involved


You can make a difference

As a 501(c)3 nonprofit organization, Odylia offers a unique opportunity for funders and supporters to join us in bringing promising new treatments to people living with rare genetic diseases. Your support will help Odylia identify and develop treatments, ensure they are safe, and navigate clinical trials and regulatory requirements to position promising therapies for approval. Support from individuals, corporations, and foundations is vital to overcoming the challenges that are keeping many people living with rare diseases from accessing safe and effective treatment options.

By supporting Odylia, you directly enable research around the world by:

  • Increasing access to the scientific expertise needed to develop novel treatments
  • Funding development of the next generation of genetic medicines
  • Accelerating current drug development efforts and ensuring programs are not de-prioritized or shelved
  • Expanding Odylia’s reach and sharing our learnings with the broader field of advocacy groups, academic research centers, and commercial drug developers to help them move more drugs across the finish line
  • Advancing our understanding of the Anc80 capsid for gene delivery and access for other non-profits

Other ways to give

Stay Informed

Odylia Therapeutics sends out newsletters twice a year with updates about current and pending projects and treatments. Occasionally, notifications are sent about webinars or other pertinent news. Sign up to receive some or all of our communications.

Interested in volunteering?

We are always looking for volunteers to help further our efforts. We update our needs often, so come back and visit this page to see new posts. If you have a specialized skill set that you think can help please follow the link below.

We are currently looking for support in these specific areas:

  • Regulatory affairs
  • Graphic design and social media engagement
  • Medical writing

Start a Fundraiser

Together, we can change the way treatments are brought to patients. Without commercial interest, treatments for rare diseases like RPGRIP1 and USH1C might not be developed. Efforts from community members like you will help us raise the much needed funds to manufacture treatments. Please consider starting a fundraiser to support our mission.

Follow this link to directions and tips for setting up a fundraising page.

Follow this link to set up your fundraising page today.

As an independent nonprofit organization, Odylia is proud to have earned the GuideStar Platinum Seal of Transparency, indicating that we share quantitative metrics on the progress we are making toward our mission and the highest levels of transparency in our operations.