Get Involved


You can make a difference

As a 501(c)3 nonprofit organization, Odylia offers a unique opportunity for people who want to make a real change in the treatment of rare diseases, advancements in gene therapy, and cures for genetic blindness. YOU can accelerate our impact by making a contribution today.

There are almost 7,000 rare diseases identified in the United States – affecting close to 30 million people. Even with these staggering numbers, rare diseases remain understudied. But treatments can be found. Your support will be used to help Odylia identify promising treatments, investigate viability, and navigate clinical trials- ultimately getting treatments to patients.

Odylia is proud to have earned the GuideStar Platinum Seal of Transparency. A Platinum Seal indicates that we share quantitative metrics on the progress we’re making toward our mission and we are committed to transparency.

Other ways to give:

Start a Fundraiser

Together, we can change the way treatments are brought to patients. Without commercial interest, treatments for rare diseases like RPGRIP1 and USH1C might not be developed. Efforts from community members like you will help us raise the much needed funds to manufacture treatments. Please consider starting a fundraiser to support our mission.

Follow this link to directions and tips for setting up a fundraising page.

Follow this link to set up your fundraising page today.

Stay Informed

Odylia Therapeutics sends out newsletters twice a year with updates about current and pending projects and treatments. Occasionally, notifications are sent about webinars or other pertinent news. Sign up to receive some or all of our communications.

Interested in volunteering?

We are always looking for volunteers to help further our efforts. We update our needs often, so come back and visit this page to see new posts. If you have a specialized skill set that you think can help please follow the link below.

We are currently looking for support in these specific areas:

  • Regulatory affairs
  • Graphic design and social media engagement
  • Medical writing