As a 501(c)3 nonprofit organization, Odylia offers a unique opportunity for funders and supporters to join us in bringing promising new treatments to people living with rare genetic diseases. Your support will help Odylia identify and develop treatments, ensure they are safe, and navigate clinical trials and regulatory requirements to position promising therapies for approval. Support from individuals, corporations, and foundations is vital to overcoming the challenges that are keeping many people living with rare diseases from accessing safe and effective treatment options.
Together, we can change the way treatments are brought to patients. Without commercial interest, treatments for rare diseases like RPGRIP1 and USH1C might not be developed. Efforts from community members like you will help us raise the much needed funds to manufacture treatments. Please consider starting a fundraiser to support our mission.
Odylia Therapeutics sends out newsletters twice a year with updates about current and pending projects and treatments. Occasionally, notifications are sent about webinars or other pertinent news. Sign up to receive some or all of our communications.
We are always looking for volunteers to help further our efforts. We update our needs often, so come back and visit this page to see new posts. If you have a specialized skill set that you think can help please follow the link below.
We are currently looking for support in these specific areas: