Get Involved


You can make a difference

As a 501(c)3 nonprofit organization, Odylia offers a unique opportunity for people who want to make a real change in the treatment of rare diseases, advancements in gene therapy, and cures for genetic blindness. YOU can accelerate our impact by making a contribution today.

There are almost 7,000 rare diseases identified in the United States – affecting close to 30 million people. Even with these staggering numbers, rare diseases remain understudied. But treatments can be found. Your support will be used to help Odylia identify promising treatments, investigate viability, and navigate clinical trials- ultimately getting treatments to patients.

Stay Informed

Odylia Therapeutics sends out newsletters twice a year with updates about current and pending projects and treatments. Occasionally, notifications are sent about webinars or other pertinent news. Sign up to receive some or all of our communications.

Interested in volunteering?

We are always looking for volunteers to help further our efforts. We update our needs often, so come back and visit this page to see new posts. If you have a specialized skill set that you think can help please email

We are currently looking for support in these specific areas:

  • Regulatory affairs
  • Graphic design and social media engagement
  • Medical writing