Odylia Therapeutics is changing the way treatments will be developed for rare diseases. Our work depends on the grassroots efforts of people throughout the world who believe in our mission and want to support patients with rare diseases like LCA6 and Usher Syndrome. Increasing awareness about rare diseases and the need for treatments, regardless of prevalence or commercial viability, and raising much needed funds will help us reach our goal of bringing these treatments to clinical trials.
Below are resources you can use to share information and help raise funds. New resources will be added regularly so check back for new information. Should you have any questions, please reach out to firstname.lastname@example.org.
One Page Information Sheets – print or email these sheets to people who might be interested in learning more about Odylia and our programs.
Sample Social Media Posts – use these on your social media outlets to reach out to your network, the more people who know about our work, the better. Consider asking your contacts to sign up for our e-news (it goes out twice a year) and/or to follow us on social media.
Videos – visit the Odylia Therapeutics YouTube Page to see recordings of past RPGRIP1 webinars
Press Releases, Articles, & Information Sheets
Graphics & Photos
Peer-to-Peer Fundraising – visit the Odylia P2P website (USA-based) to set up a team or raise funds as an individual. Ask friends, family, and people in your network to make a donation. If you would like to fundraise outside of the USA we suggest using a different donation processing platform. You can setup your international fundraising page here. Feel free to use the template file below (.ppt) to add information about yourself or your loved one. If you want to generate a QR code specific to your fundriasing page, email us at email@example.com once you establish your page and we can send you a page specific QR code.
Special Events – you may be interested in organizing a fundraising event, below are just a few ideas but the possibilities are limitless. Odylia staff can answer questions, provide ‘how to’ sheets, and assist with online registration forms. Contact firstname.lastname@example.org for more information.
coming soon! Sample letters– donors, sponsorship, etc