Vision Loss Resources
NEI Information for patients and families living with rare eye disorders
My Retina Tracker Registry – Open Access Genetic Testing Program hosted by Foundation Fighting Blindness
Rare Disease Resources
Once Upon a Gene Podcast– True stories of raising rare kiddos, hosted by Effie Parks
Understanding Drug Development– Global Genes RARE University course
Gene Therapy 101
The American Society of Cell and Gene Therapy (ASGCT) Youtube channel– a great educational resource to learn more about gene therapy
U.S. Food and Drug Administration (FDA)- Gene Therapy Inside Out (video)
National Organization for Rare Disorders– Gene Therapy Your Questions answered (video)